Patient Resources

Book Recommendations

The 36-Hour Day  A family guide to caring for persons with Alzheimer’s disease, related dementing illnesses, and memory loss in later life

By Nancy L Mace, M.A. and Peter V. Rabins, M.D., M.P.H.

This is a very helpful paperback written for caregivers of demented individuals, especially families attempting to care for their loved ones. There is much useful information , including information about dementia, how to seek assistance and what assistance is available. The majority of the book is devoted to difficulties that will inevitably arise, and encompasses both advice regarding physical care and how to approach and deal with behavioral issues. This book was originally published in 1981, and is now in its fifth edition. I highly recommend it to anyone who interacts regularly with demented individuals. Even if you are not functioning as a caregiver, there is much practical advice on simply how to interact with people suffering from memory loss and cognitive decline as they become more debilitated from their illness.

Helpful Neurological Resources

National Institute of Neurological Disorders and Stroke

Brain & Life Magazine (from the American Academy of Neurology)

Neurological Disorder Support Groups for People and Families